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Publications
The Treuman Katz Center for Pediatric Bioethics is dedicated to publishing scholarly work and research in peer-reviewed journals. This list contains the most recent work of our faculty and staff.
2008
Kelley M and Tilden SJ, Ethical Oversight of Human Subjects Research in Emerging Infections and Biodefense Research. Houston Journal of Law and Health Policy, in press, April 2008.
Kelley, M., Fryer-Edwards K, Fullerton SM, Gallagher T, Wilfond B, “Sharing Data and Experience: Using the CTSA “Moral Community” to Improve Research Ethics Consultation”, in press, American Journal of Bioethics, 2008.
Tarini BA, Burke W, Scott CR, Wilfond BS. Waiving informed consent in newborn screening research: balancing social value and respect. Am J Med Genet C Semin Med Genet. 2008 Feb 15; 148(1):23-30.
2007
Committee on Bioethics, American Academy of Pediatrics. Policy Statement. Professionalism in Pediatrics: Statement of Principles. Pediatrics 2007;120(4): 895-897.
Wilfond BS. Ethical considerations about observational research in children. J of Trauma. 2007;63(6 Suppl):S146-51.
Fallat ME, Glover J and the Committee on Bioethics, American Academy of Pediatrics. Professionalism in Pediatrics. Pediatrics 2007; 120: e1123-e1133 (Electronic pages).
Henderson GE, Churchill LR, Davis AM, Easter MM, Grady C, Joffe S, Kass N, King NM, Lidz CW, Miller FG, Nelson DK, Peppercorn J, Rothschild BB, Sankar P, Wilfond BS, Zimmer CR. Clinical trials and medical care: defining the therapeutic misconception. PLoS Med. 2007 Nov 27; 4(11):e324.
Wilfond BS The Ashley Case: The Public Response and Policy Implications Hastings Cent Rep. 2007 Sept-Oct 37 (5): 20-23.
Diekema DS. The armchair ethicist: it’s all about location. J Clin Ethics. 2007 Fall; 18(3): 227-32, discussion 233-4. No abstract available.
Opel D, Shugerman R, McPhillips H, Swanson WS, Archibald S, Diekema D. Professionalism and the Match: A Pediatric Residency Program’s Postinterview No-Call Policy and Its Impact on Applicants Pediatrics. 2007;120 (4): e826-e831 (electronic Pages).
Kelley M. Casuistry Naturalized. in Cherry, Iltis, eds., Pluralistic Casuistry: Moral Arguments, Economic Realities, and Political Theory (Dordrecht, The Netherlands: Springer, 2007).
Kelley M and Miller S. Clinical Ethics, Lange Q&A: USMLE Step 3, Fifth Edition by Donald A. Briscoe, 2007.
Myers RE, Weinberg DS, Manne SL, Sifri R, Cocroft J, Kash K, Wilfond B. Genetic and Environmental Risk Assessment for Colorectal Cancer Risk in Primary Care Practice Settings: A Pilot Study. Genet Med. 2007 Jun;9(6):378-384.
Comeau AM, Accurso FJ, White TB, Campbell PW 3rd, Hoffman G, Parad RB, Wilfond BS, Rosenfeld M, Sontag MK, Massie J, Farrell PM, O’Sullivan BP. Guidelines for Implementation of Cystic Fibrosis Newborn Screening programs: Cystic Fibrosis Foundation workshop report. Pediatrics. 2007 Feb;119:e495-518
Gunther DF and Diekema DS. Disabling Children with Disabilities - Reply to 3 Letters to the Editor. Arch of Pediatr and Adolesc Med. 2007; 161: 419-420
Committee on Ethics (*Diekema* primary author), American College of Obstetrics & Gynecology. Medical Futility. Obstet Gynecol. 2007; 109: 791-794
Gunther DF and Diekema DS. Reply to Letter to the Editor: Growth Attenuation: Unjustifiable Non-therapy. Arch of Pediatr and Adolesc Med 2007; 161: 521-522
Gunther DF and Diekema DS. Reply to letter to the editor: Only Half the Story. Arch of Pediatr and Adolesc Med, 2007; 161: 616
Diekema DS. Ethical Considerations in American Academy of Pediatrics, Guidelines for Air and Ground Transport of Neonatal and Pediatric Patients, 3rd Edition. Edited by GA Woodward, RM Insoft, and ME Kleinman. Elk Grove Village, IL: American Academy of Pediatrics, 2007: 291-302
2006
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. Am J Med Genet. 2006;140A:1033-1040.
Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond BS, Al Berg A, Ross L. Newborn screening technology: Proceed with caution. Pediatrics. 2006;17:1793-1799.
Burke W, Diekema DS. Ethical issues arising from the participation of children in genetic research. J Pediatr (Supplement). 2006;149(1):S34-S38.
Diekema DS. Conducting ethical research in pediatrics: A brief historical overview and review of pediatric regulations. J Pediatr (Supplement). 2006;149(1):S3-S11.
Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS. From public health emergency to public health service: The implications of evolving criteria for newborn screening panels. Pediatrics. 2006;117:923-929.
Gunther DF and Diekema DS. Attenuating growth in children with profound developmental disability: a new approach to an old dilemma. Arch of Pediatr Adolesct Med. 2006;160(10):1013-1017.
Henderson GE, Easter MM, Zimmer C, King NMP, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. Therapeutic misconception in early phase gene transfer trials. Soc Sci Med. 2006:62:239-253.
Loud JT, Weissman N, Giusti R, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: A challenge to providers of clinical genetics services. J Clin Oncol. 2006;24:1643-1646.
Opel DJ and Diekema DS. The case of A.R.: The ethics of sibling donor bone marrow transplantation revisited. J Clin Ethics. 2006:17(3):207-219.
Ravitsky V and Wilfond BS. Disclosing individual genetic results to research participants. Am J Bioethics. 2006;6(6):8-17.
Wade CH and Wilfond BS. Ethical and clinical practice dilemmas for genetic counselors associated with direct-to-consumer marketing of genetic tests. Am J Med Gen. 2006;142(4):284-292.
